Amyloidosis Support Group UK

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Links

On this page we provide links to other websites, which are helpful sources of information.

Useful links:
Amyloidosis Foundation: www.amyloidosis.org/

Amyloidosis Support Groups (US based): http://www.amyloidosissupport.com/

or

http://health.groups.yahoo.com/group/AmyloidosisSupportGroups/ Royal Free & University College Medical School - Centre for Amyloidosis and Acute Phase Proteins - http://www.ucl.ac.uk/medicine/amyloidosis/nac/

Myeloma UK – community forum: http://www.myelomaonline.org.uk/NetCommunity/Page.aspx?&pid=280&srcid=820

A personal 'blog' website written by a Amyloidosis sufferer:              http://www.my-amyloidosis.co.uk/

An article from Dermatology Online Journal: http://dermatology.cdlib.org/111/reviews/amyloidosis/silverstein.html

BBC Health Page: http://www.bbc.co.uk/health/conditions/amyloidosis1.shtml

Amyloidosis information on Wikipedia including some other useful links: http://en.wikipedia.org/wiki/Amyloidosis  

There are currently 20 active clinical trials around the world for AL amyloidosis.  Details and locations can be found at this site, just search on the word, amyloidosis: www.clinicaltrials.gov

This link takes you to an animation from Freelite and explains what happens to freelight chains in the Kidney: http://www.freelite.co.uk/Animation-43.asp#top 

Two Centres of Excellence in the UK and Italy are treating all types of Amyloidosis. These links take you to may articles written about the condition:
Italy (Pavia): http://www.ncbi.nlm.nih.gov/pubmed?term=amyloidosis%20and%20pavia
UK: http://www.ncbi.nlm.nih.gov/pubmed?term=amyloidosis%20and%20royal%20free

Let us know if there are any other websites that you  have found useful and may be of help to other vistors and we'll add them on this page!

www.amyloidsupportgroup.co.uk - you are not alone anymore

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